Muscular Dystrophy

Our Services Muscular Dystrophy

Muscular Dystrophy can be hard for both the client and their family to live with, with disability increasing substantially over time. Although there is no known cure for muscular dystrophy, treatment can be provided to ease to the symptoms, and complex care can help to retain a sense of normality and independence. More than 70,000 people in the UK are diagnosed with Muscular Dystrophy (MD), and there are many different types of the condition, so finding the right carer to suit you and your needs is so important.

What Causes Muscular Dystrophy

Muscular Dystrophy is a hereditary disease caused by alterations in the genes responsible for healthy muscle structure and function. These alterations mean that the cells that should maintain your muscles can no longer fulfil this role, leading to muscle weakness and progressive disability.

Symptoms of Muscular Dystrophy

Symptoms of the condition vary greatly dependent upon the type and progression of the disease and the age of the client. Symptoms can include:

  • Muscle weakness
  • Difficulty standing
  • Walking on toes
  • Clumsiness
  • The inability to sit
  • Lung, heart and breathing problems

Caring For Muscular Dystrophy

The level of care and support required will vary significantly between each individual, which is why our clinical nurses and clinical nurse specialists will continually carry out assessments to ascertain what level of nursing care is needed and design a bespoke continuing healthcare plan for each individual. By continually monitoring the progress of the disease, our goal is to focus on providing continuing healthcare rather than care just for today.

Our approach to caring for Muscular Dystrophy is the same as our approach to everyone that we care for; enabling care receivers to feel as independent as possible and ensuring they never feel isolated by their condition.

Our complex carers are not just here to provide nursing care, but to support the care receive emotionally, taking into account their lifestyle, hobbies and interests wherever possible, with a focus on person-centred care. We strive to motivate our client’s by continuously taking part in activities and helping them to interact with others.

The continuing complex care we provide can be as hands on as you or your family wish. For younger clients, our service is usually required as support to the whole family, as the parents wish to remain their child’s primary care giver. As the client gets older, or there are less family around to care for them, our care can increase, until eventually reaching 24-hour live in care, in which your carer can provide all nursing care as well as companionship.

Any complex carer or nursing carer you are assigned will be highly trained and fully certified in extensive medical support, including:

  • Respiratory management
  • Tracheal suction
  • Tracheostomy change
  • Ventilator care
  • Chest percussion
  • Ambu-bagging
  • Oxygen therapy
  • And anything else needed for yours or your loved one’s individual case

Your clinical nurse specialist will continually supervise the care you are receiving and ensure that the best carer is assigned for the job. Your clinical nurse specialist will also match as much as possible a carer that suits yours or your loved one’s personality and needs to ensure the time you or your loved one spend together is enjoyed. If, for any reason, you are unhappy with your carer, then simply let your us know and we can assign a new one for you.

With a continuing healthcare plan to improve the client’s standard of living, and a team of highly trained, dedicated and passionate nurses, we will strive to make you or your loved one as content and as comfortable as possible.